OLAYA, the little girl from Javea who was born with brittle bone disease is reported to be responding well to treatment at the Hospital Universitario de Getafe in Madrid.
The mother of the 14-month-old told the Spanish press “If anyone had have told me six months ago that my daughter’s condition was going to improve so quickly, I would not have believed them.”
Brittle bone disease is a disorder that results in fragile bones that break easily.
The disease is often referred to as osteogenesis imperfecta (OI), which means ‘imperfectly formed bone.’
OI can sometimes be life-threatening if it occurs in babies either before or shortly after birth.
When Olaya was first born, doctors did not detect that the little girl suffered from OI but her mother immediately recognised that something was not right.
Olaya suffered at least seven fractures, two of them during gestation and one during childbirth.
She was diagnosed with OI soon afterwards at Hospital Universitari i Politecnic La Fe in Valencia.
Olaya stood up just last month and her mother spoke of her joy as the little girl took small steps as she held onto her.
She said: “I told the doctors, who insisted that I relax, but my daughter’s illness has taught me to enjoy every moment.”
“It has given me a lot of strength to get to know other families whose children suffer from this disease. These children have great strength and even greater potential.”
Olaya’s family have expressed their greatest thanks to the people of Javea for their support, especially Todos Juntos.