MARBELLA’S fire department has won an award from the Debra-Butterfly Skin Association.
The recognition was given for the department’s “continuous involvement and solidarity with people suffering from this disease,” according to Marbella Council.
The award distinguishes people and entities which collaborate with the charity, making it stronger and more visible. A spokesman for the organisation explained, “we are immensely grateful for the warmth and support provided by the Fire Department.”
The award ceremony took place on Sunday, September 17, during the Solidarity Gala ‘Butterfly Children’. The event was attended by the fire chief, Medardo Tudela, accompanied by other members of the body.
In June, the charity celebrated the first anniversary of its charity bench situated at the peak of La Concha.
The bench was the brainchild of local Marbella fireman Jose Pérez Bellido who wanted to raise awareness for the condition as well as offering a place for visitors of the mountain to rest and take in the views. With the help of his fellow firemen, la Obra Social “la Caixa” and the Town Hall, in 2016, Jose saw his dream become a reality. Since then hundreds of visitors have made use of the bench and shared their selfies with the hashtags #BancSolidario and @pieldemariposa to create awareness of the cause.
Butterfly Skin is a rare, painful and incurable disease that causes extreme fragility of the skin. From the moment a baby is born with the condition they have blisters and wounds all over their body. Normal routines such as feeding or changing a nappy are complicated tasks for the parents and very painful for babies. Even a simple hug can hurt them.
The Mayor of Marbella, Jose Bernal, was present at the Fire Station for the departure of the expedition. He praised the firemen of Marbella for the work they do within the city and congratulated them for the solidarity they have shown to Butterfly Skin.