MARIA FERRER MIRALLES, the Javea resident and cancer activist who collected more than 200,000 demanding mammograms for younger woman is also focused on helping Olaya, the little girl from Javea who was born with brittle bone disease.
Maria donated half of the funds raised from her Christmas raffle to 17-month old Olaya’s parents, Laura and Ismael.
The other half was donated to the women on the cancer ward at Denia Hospital. Brittle bone disease is a disorder that results in fragile bones that break easily.
The disease is often referred to as osteogenesis imperfecta (OI), which means ‘imperfectly formed bone.’
OI can sometimes be life-threatening if it occurs in babies either before or shortly after birth.
When Olaya was first born, doctors did not detect that the little girl suffered from OI but her mother immediately recognised that something was not right.
Olaya suffered at least seven fractures, two of them during gestation and one during childbirth.
She was diagnosed with OI soon afterwards at Hospital Universitari i Politecnic La Fe in Valencia.
Olaya stood up in September of last year and her mother spoke of her joy as the little girl took small steps as she held onto her. She said: “I told the doctors, who insisted that I relax, but my daughter’s illness has taught me to enjoy every moment.”